By becoming a piece of the KT puzzle, you can help children that suffer from KT!
By becoming a piece of the KT puzzle, you can help children that suffer from KT!
By becoming a piece of the KT puzzle, you can help children that suffer from KT!
By becoming a piece of the KT puzzle, you can help children that suffer from KT!
By becoming a piece of the KT puzzle, you can help children that suffer from KT!
By becoming a piece of the KT puzzle, you can help children that suffer from KT!
By becoming a piece of the KT puzzle, you can help children that suffer from KT!
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KTS Support Group

The Klippel-Trenaunay Support Group was founded in 1986. The K-T Support Group welcomes patients and their families as members. This World Wide Web site for the K-T Support Group has been established to provide information about the group and about Klippel-Trenaunay Syndrome, and to provide families, adults with K-T, and professionals with links to the group. For more information, please visit our web site at www.k-t.org

KT Buddy

Toujours Belle/Still Beautiful is an inspirational blog from KT patient Arianna Faro. Formerly the author of KT Fabulous, Arianna has taken her blogging skills to this new site. "While having a disability does provide me with unique obstacles, it also brings me covert blessings although sometimes it is MUCH harder to see them than others." - Arianna Faro


KT Buddy

KT Buddy is an online community whose mission is to bring together KT Syndrome patients, their families, their friends and supporters by:

* Sharing KT articles, news, stories, and photos
* Facilitating interaction between KT patients, their families, and their friends
* Providing support and counseling to KT Syndrome patients and their families
* Building awareness about KT throughout the world


National Organization of Vascular Anomalies (NOVA) logo

NOVA (National Organization of Vascular Anomalies) is a non-profit organization dedicated to providing education and advocacy to patients, families and physicians in the management of hemangioma and vascular malformation. NOVA provides a wide variety of services including educational materials, educational family conferences, health insurance information, a newsletter and a web site.

The organization works to get patients to physicians experienced in the diagnosis and treatment of vascular anomalies. NOVA is able to coordinate with other agencies to provide free transportation to treating facilities. Visit: www.novanews.org/


Sturge-Weber Syndrome Community (SWSC) logo

The Sturge-Weber Syndrome Community (SWSC) is a support-based group for families and individuals affected by Sturge-Weber syndrome(SWS.) The Community was established by parents of children with SWS in an effort to provide support, information, and public education relating to the disease. Membership to the SWSC is free, and includes the SWC Talk Community online support group. For more information contact the SWSC at: swsc@swscommunity.org. You can also visit their site at: http://swscommunity.org/ .


The mission of the Sturge-Weber Foundation is to improve the quality of life for individuals with SWS and their families.  The Foundation acts as a clearinghouse of information, provides emotional support and facilitates research on SWS, KT and PWS.


Born with Klippel-Trenaunay Syndrome (KTS), Kathryn Tremonto, author and owner of Tulip Ink, understands how facing adversity can strain one's resilience on physical, emotional, and spiritual levels. Through her writing, which is based on personal experience, Kathryn strives to strengthen and preserve the love, trust, and respect children must have for themselves.
Tulip Ink actively supports advocacy efforts to educate the community about KTS. One way is by donating .25 cents for every book sold to the KT Foundation. When placing an order, mention you found Tulip Ink while visiting the KT Foundation web site, and receive free shipping on your order.


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